As many of us do, I haunt the online forums looking for new information or even unusual coping strategies for Burning Mouth Syndrome. Interested in learning more about this mysterious chronic oral pain? Check out the BMS Support Website.
As I read the entries, questions, and answers, I realize that many people who are looking for Burning Mouth Syndrome support are not reporting its symptoms. Often, they are reporting much more worrisome symptoms like sores and lesions, extremely dry and cracked tongues, and other varied complaints regarding other parts of their bodies. I find myself thinking over and over, “That is not primary BMS. They need a second opinion and to investigate other underlying disorders.”
You see, primary BMS is invisible. I am not kidding! If a doctor (and believe me, I have had quite a few) looks into my mouth and throat even when I am burning most intensely, they will see nothing unusual. That is a hallmark of this syndrome and if you have visible symptoms, please seek a different diagnosis. It may be another condition that has a cure or medicines that can better treat your symptoms.
Wouldn’t that be great?
The other issue that has been floating around for ages but has gained traction as states have legalized marijuana for medical reasons or in general, is the question, “Could cannabis or CBD oil help with Burning Mouth?” Continue reading
Many of us go through what I think of as the “thrashing stage” when we first start experiencing the pain of Burning Mouth Syndrome (BMS). It is a time of anger, sorrow, guilt, and confusion as we try to determine what is going on, why it happened, and what we can do about it. You may have thought, “If only I hadn’t done this, or if only that hadn’t happened…I would not be in pain.” It isn’t logical, but often, neither are we at this stage of our journey. Continue reading
8 years of chronic burning pain. The anniversary has passed, and so we start on the 9th year.
I have always had this feeling that something good just might come out of all of this mess, and with the help of my friend Dennis from the Facebook Support Group for BMS, I think that “something good” may have made its appearance. Continue reading
Many of these posts that follow this one first appeared on another blog I have called, “Kali’s OQM Musings,” that explores the parallels between parenting and management, along with some personal life writing. If you are interested in those topics, feel free to check in!
Burning Mouth Syndrome became a very popular topic on that blog, and it was suggested that I break these posts out into their own venue.
My goal is to share some of my journey with this mysterious, and incredibly persistent syndrome, and perhaps to help you along the way.
Stop in any time, comment if you wish, and if there is a question I can help you with, I will be happy to do so.
As many of you know, I am very close to the 8th anniversary of my second bout with Burning Mouth Syndrome.
A friend I made on the Burning Mouth Syndrome (BMS) Facebook group page named Dennis and I have stayed in contact even after I left the group.
(Trolling is bad, boys and girls; don’t do it because people like me will not hang around for it!)
He became interested in the syndrome after his lovely wife was afflicted, and has been keeping up on research, traveling to multiple specialists, and keeping others informed about any progress toward finding a cause or a cure, no matter how tangential it might be. Continue reading
May 2016 will officially be 8 years of burning. – No celebrations are planned.
If you have checked into this blog from time to time, you have seen me try all of the medicines and supplements and coping techniques that have come my way or been recommended by any of my Neurologists (three, so far).
If you have been reading this blog for a while, you know I have begun my 8th year with the chronic pain of Burning Mouth Syndrome (BMS).
There are two types of BMS. Continue reading