Is COVID Over? – Burning Mouth Updated

The last time we spoke, I was sharing my decision to ramp off the EffexorXR that seemed to be helping the burning mouth pain, but causing other side effects that cumulatively overwhelmed that benefit.

I ramped down under my Neurologist’s instructions – I can’t stress how important it is that you don’t just “stop taking a prescription!” Your body isn’t built to do that and you can cause yourself so much damage and pain that is not necessary at all! Even with ramping off gently, there can be a few side effects so please do this only under a doctor’s supervision.

I had just finished the last week of minimal doses and had discontinued the medicine when…(insert dramatic music here) COVID hit me like a ton of bricks!

Now those of you out there who have had it one or multiple times, or had mild cases of it are probably wondering, “What’s she making a fuss about?”

It was my first time. End of 2019-2020-2021-2022- and most of 2023 and I had dodged the dang bullet. I masked, I vaccinated, I distanced…and now at the end of 2023 I must have lowered my guard a tad too much, or even more likely, this variant is a sneaky one! We still can’t figure out where I may have picked it up because it was a pretty constrained weekend with family and no one else got it! Thank God for Paxlovid, because it had my symptoms under control in a matter of days.

Here’s what you came for:

What did going off Effexor XR do to my Burning Mouth pain?

What did having COVID do to my Burning Mouth pain?

What did taking Paxlovid do to my Burning Mouth pain?

Are we done with COVID???

I am so sorry to say that the answer to the first question is “Not a lot.” My burning is at a fairly moderate level right now and discontinuing the medicine did not change that much at all. I am still taking one dose of Clonazepam ODT around dinner time and that seems to be keeping me stable.

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To Boost or Not to Boost – Burning Mouth Syndrome

Boosters have been approved and recommended by the CDC, the FDA, and my Doctor.

My 82-year-old Mom got her Pfizer booster as soon as they were approved and after a day of the usual side effects, now feels much safer as she joins her girlfriends for lunch out now and then. Moderna and Johnson & Johnson were next up! Moderna was a half dose, so I went with my Doctor’s recommendation and got the Moderna booster. I had more of the side effect reactions with the booster than I did the second initial dose. Fever, chills, reddening of my injection site area, and swelling of the lymph gland under the injected arm. Not fun, but it gave me a tiny glimpse into how debilitating full-blown COVID could have been for me and this is without any lung symptoms!

I have lung damage from chronic bouts of bronchitis, and that was part of what worried me about getting COVID19 personally. I was not sure my lungs would make it through the damage that the virus can cause.

Now I will not worry as much about that.

People ask, “Does this mean you won’t wear a mask anymore?”

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Is This Remission? – Burning Mouth Syndrome

Gigi & Miles

Last month I speculated that diving full out into caregiving for my adorable grandson Miles had distracted me from my discomfort, leading to less medication because there was less pain.

This month continues this good streak of much lower pain levels, less dryness, and the lowest dose I have ever taken of Clonazepam/Klonopin ODT.

I am beginning to suspect a level of remission is at play here, and although I know from previous experience that remissions in Burning Mouth Syndrome can be of varying time lengths and may be quite temporary, I am going to savor each and every day of this one.

It is a pity that it is occurring just as the Covid19 Delta Variant has taken our area back to social distancing and masks, even for fully vaccinated people, but I am getting lots of time with our local family (Look how Miles has grown!!) and my husband and I would be taking these precautions for our little Cystic Fibrosis Warrior, no matter what.

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