Chasing the Clues – Burning Mouth Syndrome

I have gradually synced my neurologist appointments with my eleven anniversaries of BMS membership.

Each Mother’s Day ticks off another year with Burning Mouth Syndrome and I once again experience the joy of celebrating those lovely young women who are my daughters with the sadness that comes with another year of no cure in sight.

I saw my neurologist this week, and there was really nothing new to try so I will continue with my Klonopin ODT and will keep dealing with the drowsiness side effect it brings.

But no pity party for me this year. Instead, I am focusing on the pain in my life that has been relieved successfully (Migraines practically cured by Aimovig), and some recent studies that indicate that a few researchers around the world are looking at our mysterious syndrome and finding some clues. The Burning Mouth Syndrome Support website just posted a link to a new article from Scientific Reports titled “Proteomic profiling of whole-saliva reveals a correlation between Burning Mouth Syndrome and the neurotrophin signaling pathway.”

That’s a mouthful, isn’t it? You can read the entire report, along with many other articles, study reports, and abstracts at BMS-Research.

The scientific report article is dense, full of med-talk, science-talk, and many other things that sail over the heads of non-professionals but here is the main idea. Guy Krief, Yaron Haviv, Omer Deutsch, Naama Keshet, Galit Almoznino, Batia Zacks, Aaron Palmon, & Doron J.Aframian wanted to do profiling and bioinformatic analyses of whole-saliva (WS) from BMS patients compared to WS from healthy individuals. Continue reading

A Little Progress…But Not With BMS

Migraine Headache PainIn a recent post, I talked about my upcoming visit with my neurologist.  You can read that post at Burning Mouth & Neurologists.

The meeting went fine, and as I expected, there was nothing new for Burning Mouth Syndrome. He refilled my prescription for Klonopin ODT and I will continue my present therapy, which has helped better than anything else I have tried.

I mentioned in that post that I was going to ask about the migraines that I have been having at a rate of 8-17 per month for about sixteen years. He told me that the Botox therapy has improved, and offered to check into insurance pre-approval for that procedure, but also said there was something new that I could consider. Continue reading