About Kalí

2020-9-23-Kali-SmMany of these earlier posts first appeared on another blog I have called, “Kali’s Musings,” that explores the parallels between parenting and management, along with some personal life writing and posts about mentoring. If you are interested in those topics, feel free to check it out!

Burning Mouth Syndrome became a very popular topic on that blog, and it was suggested that I break these posts out into their own venue.

My goal is to share some of my journey with this mysterious, and incredibly persistent syndrome, and perhaps to help you along the way.

Stop in any time, comment if you wish, and if there is a question I can help you with, I will be happy to do so.

Welcome.

————–

Burning Mouth Syndrome (BMS) entered my life for the first time in 2006.

I had dental work on my two front teeth and woke soon after with burning in my mouth and throat. It did not affect my tongue at that time.

After visits to my Dentist and an Ear, Nose, and Throat doctor, they eventually tried an oral antibiotic and after four months of pain, I woke up my second day of antibiotic treatment with no pain whatsoever. Hallelujah! I assumed, as did my physicians, that the treatment had worked and whatever was infected was no longer a problem.

We were all so wrong.  I was simply in remission.

In May of 2008, I was again having problems with my two front teeth, and it turned out I had many issues there that eventually led to oral surgery and finally to extraction. But before all of that came about, on Mother’s Day I sang two concerts (I am a professional singer), and that night felt a little like I was coming down with something. “Fluish,” for lack of a better term. I ran a very low-grade fever, and when I awoke, the burning pain in my mouth and throat had returned.

I recognized it immediately, of course, and contacted my family doctor for the antibiotic that had worked two years earlier. She was very helpful, and I started the next day. No dice after a complete course, and my second Burning Mouth Syndrome journey began and continues.

Meanwhile, I was having oral surgery, and then the extraction of my two front teeth and the nerves in my mouth and tongue were in overdrive. The tongue got involved with a vengeance and started burning in that familiar pattern of escalation throughout the day.

You can read my posts on this blog, which give a somewhat chronological window into the life of a chronic pain sufferer and what I learned along the way. It’s not pretty, but it’s the truth.

It is my hope that something in my journey will help you in yours if you are a sufferer or love someone who is.

2 thoughts on “About Kalí

  1. Hello Kali,

    I hope this helps someone. I also had BMS and the pain was unbearable. I suffered it monthly. My doctors and dentist could not diagnose it nor treat it.
    All the treatments like gum or ice chips were very temporary. The mouthwash with lidocaine helped most but was also very temporary. The causes and treatments are pretty much all guesses since most of us sufferers have many of the potential reasons for having it.
    So after tons of desperate research I found a simple 2 vitamin regimen that cured it for me! I was suffering with terrible symptoms one week when I started taking 1000mg of L-Lysine and 400mg of Alpha Lipoic Acid per day and within 3 days the symptoms were almost completely gone! 5 days later it was completely gone. These are good ol’ fashioned OTC vitamins you can get anywhere.
    I have been following this regimen for 3 years now and have had ZERO episodes. I experimented once and tried stopping the vitamins and within 3-4 days I felt the symptoms coming back. Once I resumed, the symptoms again disappeared.
    I found this cure with a lot of luck. A dental hygienist friend recommended I try the L-Lysine which did not work on its own. Then I found a person on a message board that said the Alpha Lipoic Acid gave them a small amount of relief. So I decided to take them together and it worked! The cure also worked with no dietary or medication changes.
    I don’t know if it will work for everyone but if it helps even one person it would be great that I could help. The pain is so terrible and the lack of actual knowledge on the syndrome is very frustrating.
    Thanks for reading and hope it works for you!
    Mike B

    Like

    • Mike,
      I am so happy you found something that worked for you. I know many of the folks on the Burning Mouth Syndrome Facebook page have tried these supplements alone and together, and you are the first I have heard from who got relief. I tried it myself back at the beginning of my journey but after a year there was no perceptible difference for me. As you say, it is different for everyone. Keep in touch and let us know if it continues for you. I had an almost two-year remission and thought it was because of an antibiotic I had taken but when we tried it again when it recurred, it had no effect. They don’t call it a mystery syndrome for nothing!
      Thanks for commenting and following. It is very appreciated!
      Kali

      Like

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