Many of these earlier posts first appeared on another blog I have called, “Kali’s Musings,” which explores the parallels between parenting and management, along with some personal life writing and posts about mentoring.
Burning Mouth Syndrome became a very popular topic on that blog, and it was suggested that I break these posts out into their own venue.
My goal is to share some of my journey with this mysterious, and incredibly persistent syndrome, and perhaps to help you along the way. NOTE: I am not a doctor and I always recommend that you consult with your doctor before trying any coping strategies or treatments. That is just common sense, right?
Stop in any time, comment if you wish, and if there is a question I can help you with, I will be happy to do so, always with the caveat that I am not a doctor and cannot give you medical advice. I can only share what has worked for me with you, and point you to sources of more research and information.
Burning Mouth Syndrome (BMS) entered my life for the first time in 2006.
I had dental work on my two front teeth and woke soon after with burning in my mouth and throat. It did not affect my tongue at that time.
After visits to my Dentist and an Ear, Nose, and Throat doctor, they eventually tried an oral antibiotic and after four months of pain, I woke up on my second day of antibiotic treatment with no pain whatsoever. Hallelujah! I assumed, as did my physicians, that the treatment had worked and that whatever was infected was no longer a problem.
We were all so wrong. I was simply in remission.
In May of 2008, I was again having problems with my two front teeth, and it turned out I had many issues there that eventually led to oral surgery and finally to extraction. But before all of that came about, on Mother’s Day I sang at two concerts (I am a professional singer), and that night felt a little like I was coming down with something. “Fluish,” for lack of a better term. I ran a very low-grade fever, and when I awoke, the burning pain in my mouth and throat had returned.
I recognized it immediately, of course, and contacted my family doctor for the antibiotic that had worked two years earlier. She was very helpful, and I started the next day. No dice after a complete course, and my second Burning Mouth Syndrome journey began and continues.
I underwent oral surgery, and then the extraction of my two front teeth and the nerves in my mouth and tongue went into overdrive. My tongue got involved with a vengeance and started burning in that familiar pattern of escalation throughout the day that is a hallmark of primary BMS.
You can read my posts on this blog, which give a somewhat chronological window into the life of a chronic pain sufferer and what I learned along the way. It’s not pretty, but it’s the truth. I am not here to debate whether particular treatments or vaccines are right for you or not. Those decisions are up to you. I can only tell you about my personal experience and discoveries.
It is my hope that something in my journey will help you in your journey if you are a sufferer or love someone who is.