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You can find yourself with a new doctor for a variety of reasons. New insurance, moving to a new town, a referral to a pain specialist or Neurologist…these are just a few. In all of these cases, you will need to bring your new doctor up to speed about a chronic neuropathic pain syndrome they may never have heard about.
A Neurologist or pain specialist may have dealt with BMS before and if you have a choice in the matter, try to find one who has. Their experiences may be to your benefit.
However, many of us are caught in that somewhat awkward position of educating our medical professional and it can be daunting if you aren’t prepared.
First, do not let anyone brush you off with an “Oh, it’s just menopause. Or, It’s just a natural part of aging.” Ladies, I am talking to you here in particular, because there is an “older woman” category that we can be placed in and subsequently disregarded a bit if we aren’t careful to speak up. Once that happens, it is difficult to change that mental image of you in your provider’s mind. Speak up and present data if you would like to avoid this, and you should, because it is never productive in searching for diagnosis or treatment.
How do you present data? Good question! Continue reading
As many of us do, I haunt the online forums looking for new information or even unusual coping strategies for Burning Mouth Syndrome. Interested in learning more about this mysterious chronic oral pain? Check out the BMS Support Website.
As I read the entries, questions, and answers, I realize that many people who are looking for Burning Mouth Syndrome support are not reporting its symptoms. Often, they are reporting much more worrisome symptoms like sores and lesions, extremely dry and cracked tongues, and other varied complaints regarding other parts of their bodies. I find myself thinking over and over, “That is not primary BMS. They need a second opinion and to investigate other underlying disorders.”
You see, primary BMS is invisible. I am not kidding! If a doctor (and believe me, I have had quite a few) looks into my mouth and throat even when I am burning most intensely, they will see nothing unusual. That is a hallmark of this syndrome and if you have visible symptoms, please seek a different diagnosis. It may be another condition that has a cure or medicines that can better treat your symptoms.
Wouldn’t that be great?
The other issue that has been floating around for ages but has gained traction as states have legalized marijuana for medical reasons or in general, is the question, “Could cannabis or CBD oil help with Burning Mouth?” Continue reading
I am nearing nine years with Burning Mouth Syndrome, and if you have read this blog, you know I have tried many things to control or cure it. So far, the only thing that has been a reliable relief for me is Klonopin/Clonazepam Orally Dissolving Tablets.
Meanwhile, as those of you who suffer from BMS know so well, life goes on and so do regular dental appointments. Even if you don’t correlate the onset of BMS to dental work (many of us do), having someone working on your mouth when you are in pain can still be psychologically challenging. Continue reading
Yesterday, an old friend reached out to me through Facebook and said she had a friend who was having a “burning tongue,” and she remembered that I had said something about that at some point.
Yes, my friends, this is how awareness often happens. Continue reading
I ran into an old friend the other day, and the first thing she said was, “You look great! Is the Burning Mouth gone?”
Those of you who suffer from this mysterious chronic pain (or others like it) know exactly what I felt in that moment.
In a flash, you decide whether to tell this sweet, well-meaning person that, “No it hasn’t gone away, but thank you for asking.” (Potentially opening yourself up to a protracted conversation about it, right?)
OR Continue reading