Many of us go through what I think of as the “thrashing stage” when we first start experiencing the pain of Burning Mouth Syndrome (BMS). It is a time of anger, sorrow, guilt, and confusion as we try to determine what is going on, why it happened, and what we can do about it. You may have thought, “If only I hadn’t done this, or if only that hadn’t happened…I would not be in pain.” It isn’t logical, but often, neither are we at this stage of our journey. Continue reading
It’s just about time for my yearly check-up with my Neurologist. I refer to him as #3, since that is how many I have gone through in over 8 years of dealing with Burning Mouth Syndrome (BMS).
Yes, you read me correctly…I am now at yearly check-ups. Continue reading
As you know, I have been dealing with Burning Mouth Syndrome for far longer than I ever thought possible.
I know there are those of you who are entering or have passed your second decade with this chronic pain and my heart goes out to you.
All of us who have dealt with BMS know that stress just makes it worse. We have seen the pattern again and again, and yet, life goes on.
I am considering a run for a local, elected office.
No stress there, right?
The urge to make a difference and be of value has trumped my hesitation to put myself out there and add stress to my life…so how will I handle it? Continue reading
8 years of chronic burning pain. The anniversary has passed, and so we start on the 9th year.
I have always had this feeling that something good just might come out of all of this mess, and with the help of my friend Dennis from the Facebook Support Group for BMS, I think that “something good” may have made its appearance. Continue reading
Many of these posts that follow this one first appeared on another blog I have called, “Kali’s OQM Musings,” that explores the parallels between parenting and management, along with some personal life writing. If you are interested in those topics, feel free to check in!
Burning Mouth Syndrome became a very popular topic on that blog, and it was suggested that I break these posts out into their own venue.
My goal is to share some of my journey with this mysterious, and incredibly persistent syndrome, and perhaps to help you along the way.
Stop in any time, comment if you wish, and if there is a question I can help you with, I will be happy to do so.
If you are here for information about Burning Mouth Syndrome (BMS) and my journey with it, you are in the right place.
I am continuing the information I shared in “A Pattern of Pain – Burning Mouth Syndrome, so feel free to read that post first if you haven’t already.
I outlined my experience with Klonopin/Clonazepam ODT Dissolving wafers and how much better they seemed to manage my pain. This is still the case, but I wish I could tell you that I was completely out of pain, or better yet, in remission. Neither is true, unfortunately. I have good days and bad days, but fewer bad days than I used to.
A couple of months ago, I became curious about these bad days. They had become more sporadic, but why? What was different on those days that made my usual therapy nearly ineffective? Continue reading
As many of you know, I am very close to the 8th anniversary of my second bout with Burning Mouth Syndrome.
A friend I made on the Burning Mouth Syndrome (BMS) Facebook group page named Dennis and I have stayed in contact even after I left the group.
(Trolling is bad, boys and girls; don’t do it because people like me will not hang around for it!)
He became interested in the syndrome after his lovely wife was afflicted, and has been keeping up on research, traveling to multiple specialists, and keeping others informed about any progress toward finding a cause or a cure, no matter how tangential it might be. Continue reading
May 2016 will officially be 8 years of burning. – No celebrations are planned.
If you have checked into this blog from time to time, you have seen me try all of the medicines and supplements and coping techniques that have come my way or been recommended by any of my Neurologists (three, so far).
If you have been reading this blog for a while, you know I have begun my 8th year with the chronic pain of Burning Mouth Syndrome (BMS).
There are two types of BMS. Continue reading