Another Mother’s Day – Another Year of Burning Mouth

Every year at this time, I look back over the year behind me and forward to the future. This is the conclusion of my 17th year of continuous Burning Mouth and the beginning of what I hope will not be the 18th. I always have hope, and this past year has fulfilled at least some of them regarding this chronic pain we deal with daily.

As I have indicated in previous posts, the combination of 1 mg of Clonazepam ODT and 40 mg of Cymbalta has given me a new lease on life. I still tingle at times, and yes, dental work continues to be a challenge, but daily life is pretty awesome.

Would this work for you?

I honestly don’t know. This disorder is highly individual, and I have lost count of all of the meds, testing, and coping strategies I have tried over the last 17 years. Clonazepam has always been the most effective, and when I switched to the ODT (orally dissolving tablet), it was even more so. However, it did not completely control the burning, no matter how often I took it.

By the way, I swish until it is completely dissolved and then swallow it. I have read on other sites that people are spitting it out, and I wonder if they are getting the full benefit.

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15th Year Begins – Burning Mouth Syndrome

Yes, Mother’s Day is this weekend and each successive holiday is a combo pack for me.

On one side, there is the great joy we take in our wonderful daughters and the special families they are both creating. Feeling appreciated for the love, time, energy, and creativity I invest in them, and an added bonus this year of a precious grandson who is still trying to pronounce “Gigi” and who gives me gorgeous, gap-toothed smiles and amazingly strong hugs.

On the other side, there is the 14th anniversary of this go-around with Burning Mouth Syndrome. The 15th year begins the day after Mother’s Day with no end in sight.

There is nothing else like this in my life and it has had effects that I am probably not even aware of yet. Experts say that the body remembers trauma, whether mental or physical, and it may be surprising to see what outcomes await those of us who deal with chronic pain for years or even decades.

So, what did I learn this last year?

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Mother’s Day with Burning Mouth Syndrome

Kali & GirlsToday is Mother’s Day. 

I have received cards and flowers and even a surprise Starbucks coffee from our daughter who lives near us. It is a good day, filled with memories of the two beautiful, bright babies who grew into incredibly cute and inquisitive toddlers, went through their individual awkward teen years and came out the other side as stunning and brilliant young women. Continue reading