Yes, Mother’s Day is this weekend and each successive holiday is a combo pack for me.
On one side, there is the great joy we take in our wonderful daughters and the special families they are both creating. Feeling appreciated for the love, time, energy, and creativity I invest in them, and an added bonus this year of a precious grandson who is still trying to pronounce “Gigi” and who gives me gorgeous, gap-toothed smiles and amazingly strong hugs.
On the other side, there is the 14th anniversary of this go-around with Burning Mouth Syndrome. The 15th year begins the day after Mother’s Day with no end in sight.
There is nothing else like this in my life and it has had effects that I am probably not even aware of yet. Experts say that the body remembers trauma, whether mental or physical, and it may be surprising to see what outcomes await those of us who deal with chronic pain for years or even decades.
So, what did I learn this last year?
~Pandemics really suck and we should all do our part to try to avoid them.
~Cystic Fibrosis is a dangerous genetic disease and a bummer of a birthday present for any newborn. Even if it doesn’t “run in your family,” consider getting screened if you have the opportunity before planning new additions to your family. There are masses of research and a great group of scientists and geneticists who are working on it, so support them if you can. Cystic Fibrosis Foundation.
~Misinformation and disinformation are powerful forces in our world, both in social media and many other sources of communication. Find good sources, ask questions, and try not to inadvertently share incorrect information. It’s sometimes a challenge, but worth it.
~Sometimes you just have to pick your battles and your boundaries, and then enforce them. It may not be the easiest thing you ever do, but it may be one of the most proactive and ultimately healthful activities.
That’s all I have, my friends. I have a checkup with my Neurologist at the end of the month, and I will pass on any nuggets he may have picked up along the way regarding BMS in a future blog post but for now, it is medication and coping strategies that keep me going.
I will keep talking about chronic pain and BMS. Whether it is with fellow sufferers, family, or friends, they need to know that I am still dealing, even after all this time. And when I stop talking about it, well then, maybe that will be the time to really check in on me because depression leads to withdrawal and withdrawal can be dangerous for us.
Wishing all of you a good summer and that you keep communicating and connecting. Oh yeah, and Happy Mother’s Day to all of you Moms out there!