Tag Archives: Coping Strategies

Dental Care and Burning Mouth

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The end of the year approaches and many of you are squeezing in those last yearly checkups. Don’t forget your teeth and mouth! I know that Burning Mouth can make dentist visits a bit more difficult but remember your mouth may be much drier than normal and dryness leads to more bacteria growth, which leads to decay.

Not kidding.

Saliva usually washes bacteria away as a natural process, but when there is less saliva, those bacteria can park and enjoy a picnic on your teeth. Decay, infection, abscess, gum recession, and disease can result and have you in a dentist’s chair longer and more often!

One strategy I have found to inhibit bacteria growth in my mouth is to use Xylitol (made from birch bark only) as my sweetener of choice. Click here for more information about Xylitol.

My personal strategy was to substitute Xylitol for my regular sweetener slowly. It can cause some side effects gastrically, so adding it gradually bypasses much of that reaction. I also gradually substituted Xylitol gum for my regular mouth-moistening chew.

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Burning Mouth Syndrome and the Holidays

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This is an update of a post I did a couple of years ago. It seems like a good time to run it again and remind all of you that you are not alone.

We have covered a bit of this ground before, and again I urge you to communicate, take the rest (and medicines) you need, and use your coping strategies to get through the stress of the holidays.

Stress can be part of the “Holiday Package.“

You may be putting family events together for a variety of holidays, gathering to open gifts, and doing things you haven’t been able to do for a couple of years. It can be hard to get back into the swing of things.

Presents? Big dinners? Oh, don’t get me started! The logistics of getting everything to everyone with the uncertainty as to whether things will get there in time…

My point, my Burning Mouth Syndrome brothers and sisters, is that it can all be stressful. Life in general right now can be stressful and if you are experiencing more pain than usual, you may be suffering a “flare” that has been caused by it.

What can you do?

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Summer Heat and Your Burning Mouth

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© Can Stock Photo Inc. / AntonPrado

Summer has begun in Central Texas. Yay?

We are getting excessive heat warnings from the Weather Advisory and anticipating high temps ranging from 103 to 108 degrees or more over the next week. Oh yeah, and with high humidity to intensify it!

Does anyone out there struggle with the pain of Burning Mouth Syndrome when it is hot?

I do, and the only things that help me are the following:

  1. Getting plenty of sleep.
  2. Getting plenty of hydration. As they say down here in Texas, “If the number of times you have to go to the bathroom doesn’t annoy you, you aren’t drinking enough!”
  3. Being prepared to add a little to my meds if they are flexible. I find a .25 mg dose of Clonazepam ODT, dissolved and swished around on my tongue, will back off the intensity until it is time to take my regular .50 mg dose around dinner time.
  4. Avoiding overheating in general. Some of our medicines can make us more susceptible to heat and may even cause us to suffer heatstroke if we aren’t aware of it. Check your medicines and see if there are any warnings.

That’s all I’ve got! Do you have any strategies you use and would like to share?

Let us know here in the comments and stay cool out there!

Change, Stress, and Chronic Pain

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We have all read about the linkages between stress and chronic pain of all kinds. Our bodies know when life is getting a bit “extra” and it reacts accordingly.

Many of you may have noticed that when big events or changes in your life and routine happen, your burning mouth pain may flare. If you are wise, you have anticipated this might happen, have your coping strategies at hand, and are up to date on any medication that may be helping you.

What are coping strategies for burning mouth syndrome or disorder?

The Burning Mouth Support website has a whole page devoted to them here.

More information and help that other sufferers have found useful are at Stuff That Works – Burning Mouth Syndrome. Have I found many things they discuss to be useful? Not personally, but if I have learned anything about this mystery disease after nearly fifteen years, it is that it is very individual, and different things work for different people. Sometimes just having people to talk with about it or feeling like you are part of a community can help.

Is there a cure? No.

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Effexor XR is a Qualified Success

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I have written before about Effexor XR/Venlafaxine HCI, a medicine my Neurologist recommended since it is one of the few meds out there that I haven’t tried!

Up to now, the only thing that truly lessened my escalating burning neuralgia was Clonazepam ODT, and the side effect of that, as those of you who have tried it know well, is drowsiness.

I found over time that I could control the timing of my doses and coordinate caffeinated drinks (coffee in the morning, iced green tea until noon) to ward off daytime drowsiness. It was working okay and I was able to function. When flares arose (mostly after dental work of any kind) I could increase the dosage and the caffeine. Life was continuing to be workable.

Effexor XR/Venlafaxine HCI is an antidepressant, and my neurologist started me out with a minimal dose of 37.5 mg once a day. I had no discernible relief from it at that level, so we doubled the dosage to 75 mg once a day. At that level, I was experiencing some relief (The burning became more of a tingle that would intensify through the day until I took the minimum dose of Clonazepam ODT around dinner time.) but it wasn’t knocking the BMS out.

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Express Yourself! Life with Burning Mouth

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© Can Stock Photo Inc. / Photography33

I have discussed the power of communication before when it comes to managing chronic pain. Realistic representation of your pain levels, educating new specialists about Burning Mouth Syndrome, and even sharing with family and friends about your condition; what helps…and what doesn’t.

We have discussed counseling and therapy and I highly recommend it if you can find and afford it. It will give you a listening ear from a professional who has “no skin in the game.” You cannot overwhelm them with your frustration and pain, or frighten them about your reactions to it. You cannot express any emotions that they have not seen before. They are required to have professional boundaries, and short of your expression of the intent to self-harm or harm others, they will actively listen and then give you some ideas of how to handle these emotions. It’s a gift you give yourself.

But, you say, “I can’t afford that.” Or, “I don’t want to open up to a stranger.”

I hear you.

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Preparing for the Holidays with Burning Mouth

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We have covered a bit of this ground before, and again I urge you to communicate, take the rest (and medicines) you need, and use your coping strategies to get through the stress of the holidays.

© Can Stock Photo Inc. / Nelosa

Stress can be part of the “Holiday Package.“

Things have loosened up and you may be putting family events together, gathering to open gifts, and doing things you haven’t been able to do for a couple of years. It can be hard to get back into the swing of things.

Presents? Oh, don’t get me started! The logistics of getting everything to everyone with the uncertainty as to whether things will get there in time…

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When Contemplating a Flare – Burning Mouth

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Photo by cottonbro studio on Pexels.com

Over the last few posts, I have kept you up to date on my new medication, Effexor XR/Venlafaxine HCI.

My Neurologist initially prescribed a very low dose with no effect. We doubled it and saw the burning neuralgia back off into a tingle for most of the day. We doubled it again and got amazing relief that lasted all through the day, keeping the pain to a very tolerable tingle. Then the side effect of muscular tics began and we had to cut that little honeymoon short.

The upshot?

I am back on that medium dose of 75mg per day and I usually have just a light tingle that escalates. Sometimes I can skip that late afternoon dose of Clonazepam ODT, but other days I need it to blunt the tingle that is becoming too strong. I haven’t had a real flare yet with Effexor XR so I am unsure whether that means it is preventing them, or the stars just haven’t aligned yet. I will let you know because the ultimate test looms ahead!

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Avoiding The Pain You Can-Burning Mouth

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My posts here are mainly about Burning Mouth Syndrome, (or Disorder if you prefer). Either one fits. I share medications that have worked and not worked for me, strategies to track your pain and see what is having an effect, and coping strategies to help you get through day after day of chronic pain.

Today, I am addressing another kind of pain we can get every time we go for a vaccination. Flu, Covid, Covid Booster, updated Covid Booster, Shingrex, or any other that is recommended…yes, the dreaded arm pain from injections! Some of you find it quite debilitating, some can barely move their arm the next day, and some have varying levels of discomfort depending on what they got this time.

You may decide to get a Covid shot or not, your choice. But darn it, we also lose people every year to flu and it is nearly always preventable in otherwise fairly healthy folks. The flu vaccine has been used for years with few issues, and although there are years when it is more effective than others, it is still worth getting to me. Take a look at the influenza news coming out of Australia and it will give you a preview of what we may be dealing with this winter.

So how do you avoid the arm soreness that can come with vaccinations?

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