I realized I haven’t posted since the holidays, and I could easily blame that on everything that has gone on…the wedding in November of our younger daughter went beautifully and just this month they surprised us with the house they are purchasing, our older daughter’s wedding approaches (so quickly!) in May and they have begun to build a house not too far away from us, and of course the day-to-day work of a being a busy philanthropist and volunteer!
Did I mention I am taking on another blog editing gig?? 😀 Continue reading
The holidays are here and you are rushing around picking out gifts for those you love, preparing for travel or for travelers, and many of you may be under more stress than usual. As all of us who suffer from Burning Mouth Syndrome or other chronic pain conditions know, stress is not our friend.
What can you do to cope with the gulf that may exist between what you want to do and what you can do?
Press the pause button. Continue reading
Many of us go through what I think of as the “thrashing stage” when we first start experiencing the pain of Burning Mouth Syndrome (BMS). It is a time of anger, sorrow, guilt, and confusion as we try to determine what is going on, why it happened, and what we can do about it. You may have thought, “If only I hadn’t done this, or if only that hadn’t happened…I would not be in pain.” It isn’t logical, but often, neither are we at this stage of our journey. Continue reading
- Tagged BMS, Burning Mouth Support Website, Burning Mouth Syndrome, Chronic Pain, Diagnosis, Medical Records, Mirapex, Neuralgia, Neuropathic Pain, Pain Diary, Pramipexole
Yesterday as I grabbed my morning coffee at the neighborhood shop, I spotted an acquaintance. I had seen her around the gym where she is always intense and focused but had only spoken with her once or twice over the years. I said hello and reminded her who I was (You know when you get that feeling that they know they know you but might not remember your name or the context?) and we stood together waiting for our orders.
“My God,” she said, looking at me intently, “You always look so glowing. Why is that?” Continue reading
Both of our daughters are getting married. The younger’s wedding is just a couple of months away, and the older daughter’s wedding is next spring. Once in a lifetime moments happen, and you want to treasure every one of them, but your chronic pain companion will also be a guest at that special event and maybe you are wondering what you can do. Continue reading
As I described in a previous post (Weighty Decisions-Life with BMS), Burning Mouth Syndrome has added weight to my body, mostly from stress, but also because eating feels good. The pain stops momentarily, and after a meal, for even up to thirty minutes or so. Unfortunately, that means that we are tempted to eat too often and too much. Continue reading
- Tagged Burning Mouth Syndrome, Chronic Pain, diet, exercise, Good Calories Bad Calories, healthy fats, kidney disease, neuropathy, Stress, The Obesity Code, type 2 diabetes, weight gain, weight loss, xylitol
Another Mother’s Day is past and I enter my tenth year with Burning Mouth Syndrome (BMS). It is my constant companion, the first thing I think of when I rise and the last thing I think of when I go to sleep. Continue reading
I am nearing nine years with Burning Mouth Syndrome, and if you have read this blog, you know I have tried many things to control or cure it. So far, the only thing that has been a reliable relief for me is Klonopin/Clonazepam Orally Dissolving Tablets.
Meanwhile, as those of you who suffer from BMS know so well, life goes on and so do regular dental appointments. Even if you don’t correlate the onset of BMS to dental work (many of us do), having someone working on your mouth when you are in pain can still be psychologically challenging. Continue reading
Yesterday, an old friend reached out to me through Facebook and said she had a friend who was having a “burning tongue,” and she remembered that I had said something about that at some point.
Yes, my friends, this is how awareness often happens. Continue reading