
After nearly eighteen years of this round of Burning Mouth, I usually know what is going on. Mastering the BMS Support Website helps, as well. However, no one should skip checking in regularly with their doctor or neurologist to let them know how they are doing, and, more importantly, to see if there is any new information, medications, or coping strategies they should know about.
Please keep in mind that many images, graphics, etc. on the Internet that show you gnarly-looking tongues with cracks and lesions are NOT Burning Mouth. If you have Burning Mouth, there are no visible symptoms. It is one of the things that makes it a challenge to diagnose!
My checkups have gone to an annual schedule since I have had this for so long, and it was great to get a chance to share the physical therapy coping strategy and ask if there was anything new I should try. Unfortunately, it looks like I have tried most meds available, and the ones that worked the best had that pesky head twitch side effect, so I could not continue them.
Have you tried anything lately that worked for you?
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