I have been suffering from Burning Mouth Syndrome for nearly six and a half years now.
Every once in a while, what my Neurologist euphemistically refers to as “the persistence of it” overwhelms me and I have a brief, but intense pity party.
Instead of focusing on the optimistic side of the coin:
- It isn’t fatal
- At least it isn’t cancer
- My family is supportive
- Some drugs help
- I have developed decent coping strategies
I occasionally dip into the pessimistic side:
- It hurts nearly every day
- The drug helps but can me drowsy and aimless
- There is no rhyme or reason to the good days or the bad days
- Even on good days, my tongue tingles all of the time
- I think, deep down, I am angry
- I fear – It. Will. Never. End.
I have been active on a Facebook Closed Support Group page for Burning Mouth Syndrome sufferers. It is a positive experience most of the time, but occasionally things take a turn for the worse, and I see people posting suicidal thoughts and deep despair. 
Burning Mouth Syndrome (BMS): “Chronic burning pain in your mouth. The pain from burning mouth syndrome may affect your tongue, gums, lips, inside of your cheeks, roof of your mouth, or widespread areas of your whole mouth. The pain can be severe as if you scalded your mouth.”-
I told you recently in “
A Burning Journey 