If you have been reading this blog for a while, you know I have begun my 8th year with the chronic pain of Burning Mouth Syndrome (BMS).
There are two types of BMS. Continue reading
A Pattern of Pain – Burning Mouth Syndrome
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Tag Archives: Chronic Pain
Mother’s Day with Burning Mouth Syndrome
Today is Mother’s Day.
I have received cards and flowers and even a surprise Starbucks coffee from our daughter who lives near us. It is a good day, filled with memories of the two beautiful, bright babies who grew into incredibly cute and inquisitive toddlers, went through their individual awkward teen years, and came out the other side as stunning and brilliant young women. Continue reading
The Pity Party-Burning Mouth Syndrome
I have been suffering from Burning Mouth Syndrome for nearly six and a half years now.
Every once in a while, what my Neurologist euphemistically refers to as “the persistence of it” overwhelms me and I have a brief, but intense pity party.
Instead of focusing on the optimistic side of the coin:
- It isn’t fatal
- At least it isn’t cancer
- My family is supportive
- Some drugs help
- I have developed decent coping strategies
I occasionally dip into the pessimistic side:
- It hurts nearly every day
- The drug helps but can me drowsy and aimless
- There is no rhyme or reason to the good days or the bad days
- Even on good days, my tongue tingles all of the time
- I think, deep down, I am angry
- I fear – It. Will. Never. End.
Internet Interventions-Burning Mouth Syndrome
I have been active on a Facebook Closed Support Group page for Burning Mouth Syndrome sufferers. It is a positive experience most of the time, but occasionally things take a turn for the worse, and I see people posting suicidal thoughts and deep despair. Continue reading
Burning Mouth Syndrome-My Tongue is a Star
I told you recently in “The Patient Maze,” that I was filming a video interview about Burning Mouth Syndrome last month, and it is hitting the airwaves now. Continue reading
The Patient Maze-BMS
Image courtesy of cooldesign/ FreeDigitalPhotos.net
I have been reading about the Affordable Care Act snafus and victories with great interest. Here is a site that has very good coverage: Summary of the Affordable Care Act. I don’t begin to guess how this will all shake out, but from personal experience as a sufferer of Burning Mouth Syndrome, I can tell you that healthcare was a maze, to begin with; and an expensive maze at that! Continue reading
