I have been suffering from Burning Mouth Syndrome for nearly six and a half years now.
Every once in a while, what my Neurologist euphemistically refers to as “the persistence of it” overwhelms me and I have a brief, but intense pity party.
Instead of focusing on the optimistic side of the coin:
- It isn’t fatal
- At least it isn’t cancer
- My family is supportive
- Some drugs help
- I have developed decent coping strategies
I occasionally dip into the pessimistic side:
- It hurts nearly every day
- The drug helps but can me drowsy and aimless
- There is no rhyme or reason to the good days or the bad days
- Even on good days, my tongue tingles all of the time
- I think, deep down, I am angry
- I fear – It. Will. Never. End.
I have been active on a Facebook Closed Support Group page for Burning Mouth Syndrome sufferers. It is a positive experience most of the time, but occasionally things take a turn for the worse, and I see people posting suicidal thoughts and deep despair. 
I told you recently in “
A Burning Journey 