Revisiting Your Meds – Life With Burning Mouth Syndrome

Medical FilesMany of us go through what I think of as the “thrashing stage” when we first start experiencing the pain of Burning Mouth Syndrome (BMS). It is a time of anger, sorrow, guilt, and confusion as we try to determine what is going on, why it happened, and what we can do about it. You may have thought, “If only I hadn’t done this, or if only that hadn’t happened…I would not be in pain.” It isn’t logical, but often, neither are we at this stage of our journey. Continue reading

Happiness and Burning Mouth Syndrome

glowing face by NejronYesterday as I grabbed my morning coffee at the neighborhood shop, I  spotted an acquaintance. I had seen her around the gym where she is always intense and focused but had only spoken with her once or twice over the years. I said hello and reminded her who I was (You know when you get that feeling that they know they know you but might not remember your name or the context?) and we stood together waiting for our orders.

“My God,” she said, looking at me intently, “You always look so glowing. Why is that?” Continue reading

Special Events and Burning Mouth

Both of our daughters are getting married. The younger’s wedding is just a couple of months away, and the older daughter’s wedding is next spring. Once in a lifetime moments happen, and you want to treasure every one of them, but your chronic pain companion will also be a guest at that special event and maybe you are wondering what you can do. Continue reading

Burning Mouth Syndrome & Your Weight

The Obesity Code by Jason FungAs I described in a previous post (Weighty Decisions-Life with BMS), Burning Mouth Syndrome has added weight to my body, mostly from stress, but also because eating feels good. The pain stops momentarily, and after a meal, for even up to thirty minutes or so. Unfortunately, that means that we are tempted to eat too often and too much. Continue reading

Dentists & Burning Mouth Syndrome

canstockphoto16774292I am nearing nine years with Burning Mouth Syndrome, and if you have read this blog, you know I have tried many things to control or cure it. So far, the only thing that has been a reliable relief for me is Klonopin/Clonazepam Orally Dissolving Tablets.

Meanwhile, as those of you who suffer from BMS know so well, life goes on and so do regular dental appointments. Even if you don’t correlate the onset of BMS to dental work (many of us do), having someone working on your mouth when you are in pain can still be psychologically challenging. Continue reading

The Selfish Side of Pain?

Woman Journaling in Pain DiaryI have been writing about Burning Mouth Syndrome (BMS) for years now, and recently a reader reached out to me and said she had been dealing with this chronic pain for over fifteen years. She had read one of my blog posts and has been keeping a pain diary for the first time ever.

“Hallelujah, sister!” I wrote. Continue reading

Burning Mouth & Neurologists

Doctor Appointment for Burning Mouth SyndromeIt’s just about time for my yearly check-up with my Neurologist. I refer to him as #3, since that is how many I have gone through in over 8 years of dealing with Burning Mouth Syndrome (BMS).

Yes, you read me correctly…I am now at yearly check-ups. Continue reading

Coping With Stress and BMS

09a9aa5c07898aca806cc27863f79d20As you know, I have been dealing with Burning Mouth Syndrome for far longer than I ever thought possible.

I know there are those of you who are entering or have passed your second decade with this chronic pain and my heart goes out to you.

All of us who have dealt with BMS know that stress just makes it worse. We have seen the pattern again and again, and yet, life goes on.

I am considering a run for a local, elected office.

No stress there, right?

The urge to make a difference and be of value has trumped my hesitation to put myself out there and add stress to my life…so how will I handle it? Continue reading