Just Do It – Burning Mouth Syndrome

Posted on November 8, 2018 by kalipr

The day I have feared for so long has arrived.

I recently lost a crown on a lower molar that had a root canal so many years ago I don’t even remember which dentist or endodontist did it. However, he did not do it well and now I am looking at having to undergo a second root canal on it before my present dentist will put a new crown on it. In order to take advantage of the dental insurance we have through my husband’s job, that root canal will have to happen this year.

I know many of you out there lack that luxury and I am sorry. Even with insurance, the temporary crown was not covered and cost over $500. I know there are families out there who do not have that to spare, and their decision might have been to continue to suffer and end up with a tooth extraction eventually. But beyond the cost element, for those of us who suffer from Burning Mouth Syndrome, we know there will be yet another price to pay.

Dental work can cause flare-ups of our burning that can last weeks, months, or even years. Continue reading →

When Burning Mouth Pain Takes Center Stage

Posted on May 10, 2018 by kalipr

I have been battling oak pollen allergies since the beginning of April. We got a good rain for a day, and a small respite, but the levels are back up in the medium category today and I feel it.

Burning Mouth Syndrome is a foe I have been battling for ten years now (Mother’s Day will mark the 10th anniversary…Yay?) and I have noticed a pattern that arises when I am forced to take decongestants along with my antihistamine because nasal congestion is rocking my world. There is no doubt in my mind that the drying action of the decongestants, although needed and effective for the life-sustaining action of breathing, also irritates the burning neuralgia of BMS. In spite of adding quarts of water to my intake, the pain has been nearly unbearable some days. When added to a string of migraines, triggered by sinus pressure, it has been a tough time.

I found myself looking forward to that next dose of Klonopin/Clonazepam so I could doze, even if I didn’t really have time to do that. To sit in my chair, watching TV with my husband, and just drifting off to sleep where the pain was not present was a gift on those high burning days. But what do you do when you have things to do, people to see, and responsibilities that are not subject to rescheduling? What do you do when there is a once in a lifetime event going on, and you can’t afford to miss it?

You power through. Continue reading →

Revisiting Your Meds – Life With Burning Mouth Syndrome

Posted on October 5, 2017 by kalipr

Medical Files Many of us go through what I think of as the “thrashing stage” when we first start experiencing the pain of Burning Mouth Syndrome (BMS). It is a time of anger, sorrow, guilt, and confusion as we try to determine what is going on, why it happened, and what we can do about it. You may have thought, “If only I hadn’t done this, or if only that hadn’t happened…I would not be in pain.” It isn’t logical, but often, neither are we at this stage of our journey. Continue reading →

Hide No Longer – Burning Mouth Syndrome

Posted on February 9, 2017 by kalipr

Yesterday, an old friend reached out to me through Facebook and said she had a friend who was having a “burning tongue,” and she remembered that I had said something about that at some point.

Yes, my friends, this is how awareness often happens. Continue reading →

BMS-Your Invisible Companion

Posted on June 16, 2016 by kalipr

2016-6 Tulsa 40 Reunion 4 I ran into an old friend the other day, and the first thing she said was, “You look great! Is the Burning Mouth gone?”

Those of you who suffer from this mysterious chronic pain (or others like it) know exactly what I felt in that moment.

In a flash, you decide whether to tell this sweet, well-meaning person that, “No it hasn’t gone away, but thank you for asking.” (Potentially opening yourself up to a protracted conversation about it, right?)

OR Continue reading →

A Burning Journey

One Woman's Experience with Burning Mouth Syndrome

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