Tag Archives: BMS Research

What’s New for Burning Mouth?

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Another year is coming to an end with Burning Mouth Syndrome (Disorder) and I want to share a bit of the research that has been done for us.

As usual, there isn’t a lot and many of the studies are small, but I read everything I can get my hands on and the Burning Mouth Support website publishes links or PDFs!

BMS sufferers have no foundation or national presence so between Facebook Groups (You can find links to them on the BMS Support website!), the Stuff That Works – Burning Mouth Syndrome site, and general Google searches, we make do.

Watch out for those Google searches, though. Often someone is trying to sell you something and often, it works for no one.

Take a look at the research on the BMS Support website. We find the most applicable and well-cited abstracts and reports, and although the scientific language can get a little wordy or even a lot confusing, you can zero in on the conclusion.

You may find a coping strategy or a medicine that may help you deal with this chronic pain. Knowledge is a good thing and the difference between the anecdotal comments on Stuff That Works and Facebook Groups and the conclusions of scientific studies can be dramatic.

Do we need more research?

Darn right, we do!

When will we get it?

When scientists get around to it. There is a hope that as more Americans age and experience this particular chronic pain the numbers will force or validate the need for more research, but it is only a hope.

Meanwhile, we support each other and look for coping strategies and medicines that are helpful.

Happy Holidays to you all, and here’s to making 2024 a better year for all of us.

Learning More About Burning Mouth

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If you are here, you probably either have Burning Mouth Syndrome (Disorder) or know someone who does. It is not known widely enough to attract the occasional reader.

What do you know about BMS? What have you read about it that comes from a trusted and/or scientific source?

Are you prepared to educate your physician, specialist, or neurologist about this mystery disease?

Most people aren’t. and that is why we created the Burning Mouth Syndrome Support Website just for you.

If you haven’t seen it, or haven’t stopped by for a while, don’t miss the latest research on burning mouth. Feel free to share it with your medical professionals and the good ones will appreciate it. Their days are long and their time is short, but they often really want to help you understand what might be happening with your body.

As for me, as I launch into my 16th year with BMS, I am grateful for a good neurologist who listens and is open to learning. I am grateful for a supportive husband, and I am grateful for you readers who share your struggles and triumphs with all of us. One day, hopefully soon, I will get to write an article with concrete steps to help all of us, and God willing, news of a cure. Wouldn’t that be wonderful?

We are on your side in the journey, so don’t give up hope.

Burning Mouth Syndrome and Me

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Photo by Pixabay on Pexels.com

Strange title for a post on a blog that has “One Woman’s Experience with Burning Mouth Syndrome” in its title, right?

But it seems to be necessary at this time of divisiveness and stress to reiterate that this is my experience. Yes, I do reference what little research has been done on this burning neuralgia, and will continue to send people to the BMS Support Website where they can read it themselves.

The truth is that NO ONE KNOWS what causes Burning Mouth. You can suspect dental work (I do personally!), or stress, or vaccines of any kind, or whatever you want to, but again I stress that NO ONE KNOWS.

When I decided to start this blog, it was for two reasons. One was to give me an outlet to say how it was feeling to me and what it was doing to me. Expressing yourself can give some relief. The second was to share what I learned about it, all the things I tried, how I got my diagnosis, and what coping strategies helped me and might help others.

Continue reading →

Chasing the Clues – Burning Mouth Syndrome

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I have gradually synced my neurologist appointments with my eleven anniversaries of BMS membership.

Each Mother’s Day ticks off another year with Burning Mouth Syndrome and I once again experience the joy of celebrating those lovely young women who are my daughters with the sadness that comes with another year of no cure in sight.

I saw my neurologist this week, and there was really nothing new to try so I will continue with my Klonopin/Clonazepam ODT and will keep dealing with the drowsiness side effect it brings.

But no pity party for me this year. Instead, I am focusing on the pain in my life that has been relieved successfully (Migraines practically cured by Aimovig), and some recent studies that indicate that a few researchers around the world are looking at our mysterious syndrome and finding some clues. The Burning Mouth Syndrome Support website just posted a link to a recent article from Scientific Reports titled “Proteomic profiling of whole-saliva reveals a correlation between Burning Mouth Syndrome and the neurotrophin signaling pathway.”

That’s a mouthful, isn’t it? You can read the entire report, along with many other articles, study reports, and abstracts at BMS-Research.

The scientific report article is dense, full of med-talk, science-talk, and many other things that sail over the heads of non-professionals but here is the main idea. Guy Krief, Yaron Haviv, Omer Deutsch, Naama Keshet, Galit Almoznino, Batia Zacks, Aaron Palmon, & Doron J.Aframian wanted to do profiling and bioinformatic analyses of whole-saliva (WS) from BMS patients compared to WS from healthy individuals. Continue reading →