I ran into an old friend the other day, and the first thing she said was, “You look great! Is the Burning Mouth gone?”
Those of you who suffer from this mysterious chronic pain (or others like it) know exactly what I felt in that moment.
In a flash, you decide whether to tell this sweet, well-meaning person that, “No it hasn’t gone away, but thank you for asking.” (Potentially opening yourself up to a protracted conversation about it, right?)
8 years of chronic burning pain. The anniversary has passed, and so we start on the 9th year.
I have always had this feeling that something good just might come out of all of this mess, and with the help of my friend Dennis from the Facebook Support Group for BMS, I think that “something good” may have made its appearance. Continue reading
Many of these posts that follow this one first appeared on another blog I have called, “Kali’s OQM Musings,” that explores the parallels between parenting and management, along with some personal life writing. If you are interested in those topics, feel free to check in!
Burning Mouth Syndrome became a very popular topic on that blog, and it was suggested that I break these posts out into their own venue.
My goal is to share some of my journey with this mysterious, and incredibly persistent syndrome, and perhaps to help you along the way.
Stop in any time, comment if you wish, and if there is a question I can help you with, I will be happy to do so.
Welcome.
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If you are here for information about Burning Mouth Syndrome (BMS) and my journey with it, you are in the right place.
I am continuing the information I shared in “A Pattern of Pain – Burning Mouth Syndrome, so feel free to read that post first if you haven’t already.
I outlined my experience with Klonopin/Clonazepam ODT Dissolving wafers and how much better they seemed to manage my pain. This is still the case, but I wish I could tell you that I was completely out of pain, or better yet, in remission. Neither is true, unfortunately. I have good days and bad days, but fewer bad days than I used to.
A couple of months ago, I became curious about these bad days. They had become more sporadic, but why? What was different on those days that made my usual therapy nearly ineffective? Continue reading
As many of you know, I am very close to the 8th anniversary of my second bout with Burning Mouth Syndrome.
A friend I made on the Burning Mouth Syndrome (BMS) Facebook group page named Dennis and I have stayed in contact even after I left the group.
(Trolling is bad, boys and girls; don’t do it because people like me will not hang around for it!)
He became interested in the syndrome after his lovely wife was afflicted, and has been keeping up on research, traveling to multiple specialists, and keeping others informed about any progress toward finding a cause or a cure, no matter how tangential it might be. Continue reading
May 2016 will officially be 8 years of burning. – No celebrations are planned.
If you have check
ed into this blog from time to time, you have seen me try all of the medicines and supplements and coping techniques that have come my way or been recommended by any of my Neurologists (three, so far).
If you have been reading this blog for a while, you know I have begun my 8th year with the chronic pain of Burning Mouth Syndrome (BMS).
There are two types of BMS. Continue reading
Today is Mother’s Day.
I have received cards and flowers and even a surprise Starbucks coffee from our daughter who lives near us. It is a good day, filled with memories of the two beautiful, bright babies who grew into incredibly cute and inquisitive toddlers, went through their individual awkward teen years and came out the other side as stunning and brilliant young women. Continue reading
I have been suffering from Burning Mouth Syndrome for nearly six and a half years now.
Every once in a while, what my Neurologist euphemistically refers to as “the persistence of it” overwhelms me and I have a brief, but intense pity party.
Instead of focusing on the optimistic side of the coin:
I occasionally dip into the pessimistic side:
A Burning Journey 