If you have been following the news, you know that most current cases of Covid, including reinfections, are the Omicron BA-5 variant, which has two faces for us. The good face is that it is not as virulent and fatal for most people. Note I do not say all. The bad face is that it is even more infectious than measles and doctors note correlations between accumulated injury to the body and long Covid symptoms with reinfections. For those of us with the chronic pain of burning mouth, the prospect of adding another layer of symptoms or exacerbating the ones we have with hacking coughs and congestion is daunting.
Interested in learning more? NPR explains it here very well.
Our immediate family has remained relatively unscathed from Covid. Our younger daughter and her husband who live in another state got it, but our daughter is a front-line healthcare professional and they are both somewhat frequent travelers, so that was probably unavoidable. They are young, healthy, and did okay since they were fully vaccinated and boosted, but it wasn’t a pleasant experience.
My husband and I are much more isolated usually and are still masking in any place that isn’t open air or hasn’t been screened for vaccination status. We are often the only masked people around. Our daughter and son-in-law who live near us do the same. We all know this will eventually not be enough, and at some point, Covid will be a possibility and perhaps even inevitable. Something more contagious than measles is a difficult foe.
Our goal is always to keep our grandson who has cystic fibrosis as safe as possible and last week he got his first vaccination. As his mother said, “That breeze you felt today was all of us letting out a sigh of relief!” He has more to go, but it was very reassuring to do all that we could to protect those little lungs.
Back to Burning Mouth. I mentioned in my last post that I was trying Oxtellar XR on top of my daily dose of Clonazepam ODT. The lowest dosage did nothing perceptible so my Neurologist took it up to the next level. I soon came down with a mild head cold with lots of congestion that turned into bronchitis (not Covid) and I am still a little congested, so I haven’t been able to tell if it has helped yet or not. I will ask to stay at this level for another month to give it a fair chance. I will let you know how it goes. On the upside, I haven’t experienced any side effects that have been noticeable, but if you have had Burning Mouth for any length of time, you know how head colds or flu can cloud your perception of your symptoms for a while.
Stay tuned, and whatever I learn, I will pass it on here. You can read about the science of Burning Mouth at the Burning Mouth Support Website or various Facebook groups (The links are on the website!) I have also been active in a group called Stuff That Works – Burning Mouth which is collecting information from BMS sufferers and synthesizing it into data and some recommendations that are crowd-sourced. Some of the questions people ask are not correctly constructed but get past that and you might discover a coping strategy you haven’t tried or a med you might want to ask your doctor about.