(UPDATED 2-6-25) I rarely post twice a month, but things are popping up in the world of pain medicines, and you should probably know about them!
First, The New York Times Daily Podcast ran a cast about #chronicpain and some new developments in dealing with it. It was eye-opening and informative, so I bought a copy to share here. If you find it useful, consider subscribing to the NYT Daily. I learn something new nearly every day!
In addition, my friend and co-worker Dennis Sharpe (BMS Support Website) shared information about a new medicine coming out from Vertex. It is called Journavx and it sounds like it may be a game changer for moderate to acute pain. Will it work for Burning Mouth? Only time will tell, but if you don’t know about it, you can’t ask, right? Click on the link below to learn more about it.
I will ask my Neurologist what he thinks of it concerning the relief of burning mouth pain and I will share that with you soon.
UPDATE NOTE: I spoke with my Neurologist yesterday and this is what he said: “I actually had another patient ask about the new medication, Journavx. The problem is that it is only approved for acute pain treatment. I wish I knew why. Unfortunately, that means it is not an option for you at this point as we are not likely to get it approved, at least not in any reasonable amount of time. Thank you for contacting me about it.”
Maybe at some point they can get it approved for lower levels of pain, particularly chronic pain, but most of us with BMS would not qualify at this point.
Do I sound a little excited? I am. I am eager to see where science and pain relief will take all of us in the coming years. My prayer is “Relief for everyone!”
A Burning Journey 
I was taking Lisinopril for my blood pressure. With a few weeks, my started burning. It was very painful, followed by awful taste. By morning, my mouth was coated white and bright red. When I coughed, my salvia was milky white. I told the doctor, he in mouth and said he didn’t see anything. Not until l started coughing an entire night, I knew it was bad. In the ER, I needed breathing treatments and antibiotics. I’m fine now but why don’t doctor learn about the meds they prescribe. My former doctor used to take time to learn about medicines he prescribed.
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Linda, so sorry you went through that, but it does not sound like typical Burning Mouth Disorder. If antibiotics helped, there must have been some kind of bacterial infection, so it may or may not have really been linked to the Lisinopril. There are plenty of blood pressure meds out there, so I hope you find one that agrees with you. Thanks for sharing. Kali
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The antibiotic was for the Lung infection after the medication caused my Asthma to become worse.
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