Another month began and I am still getting the best symptom relief I have ever had without annoying side effects.
Clonazepam ODT at 1 mg and Cymbalta at 40 mg once a day is doing the trick for me. I try not to get too excited about it because I have been fighting this dragon for almost seventeen years, and I know things can change, flares can happen, and medicines can simply stop working.
Meanwhile, I am going to enjoy this respite. I am traveling with my family to Maine for a couple of weeks and then to Amsterdam with my husband. He will be working, but I will take long walks, look at beautiful old things, and enjoy the coolness that is sadly lacking in Texas right now.
When I return from this lovely travel, I will probably have a root canal done on a tooth that lost its cladding and had to have a new crown a few months ago. We think nerve damage has happened because it remains incredibly sensitive to both hot and cold and the usual treatment is a root canal through the new crown.
If you have read this blog at all, you know I suspect dental work to be the cause of my Burning Mouth Disorder and dental work nearly always causes my worst flares. I am not looking forward to this, but it will need to be done.
A root canal will be the ultimate test of the Clonazepam ODT/Cymbalta combo and I will keep you informed as I go through the process. If C/C keeps it to a dull roar, or even better, a tingle, I will be doing a happy dance!
Wish me luck.
A Burning Journey 
good luck and ENJOY every day of relief’
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Thanks so much, Eileen!
I hope you are doing well, too!
Kalí
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Love hearing that you have so much relief…and hoping it continues forever! Thank you for continuing to support others.
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Thank you, Susan!
My dearest hope is that others find relief, as well. You never know when something that didn’t work that well for you is just the ticket for someone else. Such a mystery disorder!
Good luck to you and I hope you are doing well, too.
Kalí
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Hi Kali, your upcoming trips sound wonderful.
I too take 0.5 Clonazepam and 30 mg. Cymbalta daily for several years and the result is virtually pain free. My first oralmaxilofacial specialist recommended this … with the addition of a small dose of Gabapentin. I’m just grateful that these meds work so well. My second specialist felt strongly about following the recommendations of the first. While I wish there was a cure for Primary BMS, it’s gratifying to know there is medication to remove the severe pain that I certainly remember … even though it is about eights years ago when it began.
Barbara
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Barbara,
I am so glad you are getting relief! I think we all pray for a cure someday and hopefully I will get to live to see it!
Have a lovely rest of the year,
Kalí
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Good morning Kali,
So glad you’re getting relief. I was on Cymbalta, not that combination and think that’s the key to this mystery. I’ve tried combination and off label but nothing really helped. What a way to start a vacation in Maine. My daughter lived in the Portland area and it was beautiful. So different than Atlanta!
I wish you luck with your root canal. I had my oral surgery three weeks ago. I had dental implants placed on the lower jaw. My life changed again. I think for me it’s safe to say, my BMS all related to all my dental issues my entire life. My diagnosis of HPP was discovered too late in life to change my outcome as far as the bone issues in my mouth. The medicine I’m on I hope will help improve bone loss and strengthen what I have. I’m dealing with a numb tongue and no burning. My lips burn but I have no feeling on my chin. Basically my lower jaw is numb. I react to throbbing pain where my bottom front teeth use to be. Shooting pain from both ears down my jaw line. Instead of a very dry mouth, I drool. So unprepared for this. The oral surgeon has been called but has brushed it off. The last call he said it was dry socket and he would call in more pain meds. I find that unacceptable. The post op was suppose to be one week but no appointment for three weeks. I have issues and I think should have been seen. I go in Monday. I also have lost all trust. I had high hopes I would finally enjoy my youngest daughter’s wedding with a wonderful smile. In five weeks we’ll be in Denver. I hope I get some feeling back and it’s not permanent nerve damage.
Always thinking of you and your encouragement you share. Enjoy your travel and time away. Traveling does make me feel better. In Denver I’ll be with family and friends. Big distraction even better.
Hugs and enjoy❤️
Jan
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Jan,
I am so sorry you are going through all of this. That doesn’t sound anything like what my daughter experienced with a dry socket after wisdom teeth removal. After the BMS diagnosis, my periodontist agreed that implants would likely irritate what was going on even more and I went with a DaVinci bridge that is really beautiful and didn’t do any more damage. Your HPP is a whole different animal though, and I hope your oral surgeon is up to the challenge. The timing is so terrible, too.
Keeping you in prayer for relief and a lovely time at the wedding.
Kalí
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Good luck!
Linda xx
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Thanks, Linda!
Kalí
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