I have been contributing to the BMS Support website for many years now, and I am seeing the beginning of a pattern in the research, studies, and conclusions of the scientific community over time. Does it definitively identify a cause or diagnostic tool for BMS?
No.
What it does do, however, is to suggest that our chronic pain may not be unique in where it originates.
We know there are structural physical changes that are detectable in the taste buds of BMS sufferers. We know that our saliva shows some changes, as well. We know that the hallmark of primary BMS is the lack of lesions, sores, geographic tongue, or any other visible features and that’s where it gets very frustrating. How do we tell our doctors that we are in pain when they see no evidence of it? How do we ask for medicines or treatments that may ease our symptoms? How do we explain to them in their language (medicalese?) that this is not an unknown malady and that no matter how limited, there are researchers out there who are looking at the linkages between unseeable inflammation of nerves and its effects on chronic pain?
It’s tough, but the BMS Support website is there to help you educate your health professionals. Links to the latest studies, abstracts, and reviews are there for them to peruse and we all can learn together.
Take a minute and click around on a site that volunteers have made and paid for to help you. If you know of studies or research that is not listed there (Please check!) just let us know! Dennis Sharpe puts in his own funds and many hours to make this resource for all of us and he can always use your help to find new information to share.
Burning Mouth doesn’t have a foundation to help fund research and no celebrity spokespeople to raise awareness. We have to make our own resources and be of support to each other on this burning journey.
Wishing you luck, and see you down the road…
A Burning Journey 
I have some exciting news. I just ordered something called Methylene Blue. I heard about it in a recent docu-series about healing disease and then it came up in a group I am in that is a course I enrolled in (Energetic Interference Removal) – – anyhoo, someone in there mentioned a book about Methylene Blue. I didn’t think much of it, but tucked it away to research for another time. Then I posted in the group about asking for support on my BMS and it came up again. I started to look it up on online and the second one website I found actually said it could help with BMS. I wish I bookmarked that website. I did a little more poking around and I feel confident in trying it. I then contacted the company that makes it and they hadn’t had any direct experience with this product and BMS but directed me to this study:
https://www.jomos.org/articles/mbcb/full_html/2020/03/mbcb190056/mbcb190056.html
Im going to give this a try and will record how I go about it and come back to let you know how it goes.
I’ve tried everything else, why not this!
Doing my best – Tammra
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Tammra,
I am eager to see what this does for you. It is an old remedy and is being used as a pain relieving oral rinse by some cancer treatment patients, as well. Others are claiming all sorts of things about it when taken internally or by infusion, but I don’t think that is something I would try when an oral rinse has much less risk of side effects, etc. and may address our specific pain. I look forward to hearing about your experience.
Kalí
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I have an appointment with my PCP this week and will ask her about Methylene Blue. She has been very supportive and open to the discoveries I’ve come across in researching BMS and looking for something to give me relief. I will also pass it on to Dr. Cibele Nasir-Heir from Rutgers School of dental medicine whose study on BMS I participated in this past year. We, sufferers must keep spreading the word about this miserable condition.
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Joli,
Let us know what you find out! We appreciate it!
Kalí
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Will do, Kali.
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